seekingERPnorthwest

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About seekingERPnorthwest

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  • Gender
    Female
  • Location
    Cumbria

Previous Fields

  • OCD Status
    Sufferer
  1. Thanks for clarifying that Bath is not part of the HSS programme, Ashley. Their website says they provide "expert and individualised highly specialist services" - perhaps I've mistakenly been assuming that "HSS" stands for "Highly Specialist Service" when in fact it stands for Highly Specialist Severe specialised service (sometimes). Or... Anyway, the Highly Specialised NHSE-funded services say that they are for the most severe cases - at level 6 on the stepped care model, right? - and they are the ones which require you to have tried medications which mightn't have been offered to you... (unless as you say there's a medical reason for not offering it). Bath's website says that they aim to "meet a gap in highly specialist evidence-based treatment (CBT), in particular focussing on those service users with the most complex needs", but presumably they can only treat up to "level 5" so how can it not be the highest level but at the same time (?) be for the "most complex needs". Eh? But isn't level 6 reserved for HSS with "most severe cases"? Almost right but - Springfield says its NHSE-funded service is at level 5!! And as if anyone can work out which is more severe and / or complex out of severity and complexity... ... ... (I can't). And if or how the 6 levels do or don't relate to primary, secondary, tertiary etc. ..... Is it me or is the system bananas? The reason I was keen to try to meet HSS criteria is because of my experience of how stressful trying to get straightforward and consistent information out of a CCG is. That is why I was asking about these augmentationy medications which I might need to try to be eligible for central funding instead / in case my CCG won't fund the Bath assessment given that they already funded my assessment at CADAT (not realising that CCG funding is the only option for Bath). I understood that these include "neuroleptic medication", "first or second generation antipsychotics", "anti-obsessionals", "psychotropics".. etc. etc. so that's why I was wondering what other people had been offered and whether anything improved as a result of taking them! If augmentational agents are on the HSS criteria list then you'd think there'd be a reason for that - just can't seem to fathom why they are on the list if the evidence is weak and experts don't recommend them.
  2. The HSS (highly specialised service) criteria say you have to have tried augmentation and that they won't make any exceptions due to lack of organisation.... ...
  3. Does anyone know if the team at Mind over Marathon will be having any further similar opportunities? I always find out about these things after they have happened and wish I'd known about them in time to apply to take part! I really wish there was a retreat which included OCD therapy and physical exercise on offer somewhere in the world. There was a summer camp for young people in Leeds which was on tely - perhaps for eating disorders - it included physical exercise, group sessions, mentoring etc. - and I really wish there was a similar programme for grown ups.
  4. Sorry if I misunderstood this but I thought Ashley sent out the recording of the Q&A and was waiting for Adobe to get back to him after sorting out the crash so we could see the recorded version of the first part of Paul Sarkovskis' webinar. Are we still waiting for Adobe to sort it out?
  5. Hi Maddie, thanks for sharing and good luck with the therapy. Please share any tips and let us know how you get on
  6. Thanks so much, Avo. First Step was introduced after I had passed that stage so I did First Step at about the 3rd or 4th step. It consisted of a nice bloke and a Powerpoint. ERP was not part of First Step when I did it but now it is. I asked if I could have ERP and Cumbria Partnership said no, because I had not responded to CBT, but that 2/3 of patients do not. Fortunately I found out about NHS Choice so for my next episode of care I exercised my legal right to go elsewhere. With a lot of stress and struggle. Subsequently I found out that Cumbria Partnership has a NICE Guidelines policy. I did a Freedom of Information request to find out whether or not CBT with ERP has been ratified. NICE Guidelines have been ratified for First Step but not for adult secondary care. So you cannot get CBT with ERP in my area. I have not been able to find a database of which Trusts do offer CBT with ERP. I have a care co-ordinator at long last in Cumbria. He says that he can only do "very basic" ERP and recommends I wait to see a specialist instead. I've been waiting 15 months now... Polar Bear - I'm afraid the CBT I've had or have been offered has not included ERP, hence my quest to try to find a CBT service which does offer with ERP within a realistic travelling distance of Cumbria. One of the difficulties is that there is not specialist centre in the whole of the north west of England - there is in Newcastle in the north east (subject to CCG funding) but that would be the best part of a 6 hour return journey for a 1 hour appointment. Manchester would be the obvious place for them to open a CBT with ERP centre in the north west. Glasgow is easy to get to if they did it there but no good in countries with devolved healthcare and no reciprocal arrangements... .... ... I have been on the waiting list for ADRU for 8 months but they have no way of knowing when I would be seen, and their geographical catchment for their hoarding option does not stretch to Cumbria. So I've applied to Paul Sarkovskis' service in Bath instead, because they will travel throughout the country. But Paul said in the Webinar that theirs is a tiny service and is flooded with applications. My local MP happens to be Tim Farron, and on the ITV debate last night he told the story of a 19 year old from my town who tried to get help for her eating disorder but was told that it was not serious enough. The NHS should not wait until people's conditions deteriorate until they are prepared to help them. It's going to cost them more in the long run, and it's going to affect people with mental health conditions and our famiies, our job prospects etc. etc. I've heard "cutting waiting lists" mentioned as part of the election banter. What needs to be done to cut waiting lists for people with OCD and how soon can they do it?!
  7. You seem like a determined and committed person to me. Good luck!
  8. You might! I love learning languages and if the language you are learning is part of the Michel Thomas series, I recommend getting it from Ebay or the library etc.!
  9. I see what you are saying, thanks for the advice. I am hardly doing anything to help myself at the moment - feeling paralysed following past 15 month journey to try to get help and there still being no therapy going to happen soon... Feeling sorry for myself and cross with the NHS even though we should be grateful for it...
  10. Hi plastic, I understand, so thanks for sharing. As you live in London, if you'd like face to face help (NHS, private, support groups), it isn't far away
  11. Just to let you know, when reading your post, saying "I try really hard to remember..." what I didn't get, and my first thought as a person who doesn't know you was "why are you trying to remember that?!" I'm not trying to be insensitive - I just thought you might be interested to hear how this sounds to someone who isn't suffering from these particular thoughts. Obviously you are, but I thought I'd add my reaction on the offchance it might help!
  12. Hi, don't know how helpful or not this is going to be but here goes:! I know what it's like to have variations in emotions and mood. For me, I guess it's linked to medication and what other things are going on for me. I think it's important to have people in my life who can understand this. In terms of new relationships though, I suppose it's hard because we're not necessarily ready to tell new people all the ins and outs of our mental health and we don't want to scare them off.. I'd like to think that for me, if the person is the right kind of person for me, then they will need to have to understand at some point... So for me, it would be important to be able to be honest with them relatively early on. If you're not ready to be honest with each other about this type of stuff then maybe it doesn't matter whether or not you've bored her or not communicated with her at the right times, or whether you are giving off a bad impression cos you're not that emotionally close anyway! (I'm female, 38)
  13. Great. You can also call or email CADAT directly with any questions about referral - they're really nice.
  14. Hello Angst, I have been through the process of referral to CADAT and had an assessment there which was really great. I recommend you make an appointment with a supportive GP for Tuesday afternoon onwards. That way, if the IAPT don't help, you can go to the GP, and if they do help, you can always cancel the appointment. You have the legal right to choose to have your first outpatient assessment in a "new episode of care" wherever you want to go - i.e. you can (and should!) choose to go to CADAT, because it's a centre of excellence, and because living in Lambeth, you will be able to get to their outpatient service easily. It is not up to the GP to block it on grounds of cost. I wouldn't recommend going to that GP for anything ever again! A good GP will know what patients' legal rights are and will support you in making the choice which is best for you - clinically, not financially!
  15. Hi everyone, how do you cope when you've been on a waiting list for ages and all they can tell you about the wait is that it's still going to be ages?