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ocd care centers


Guest marie13

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Guest marie13

hi I am a mum of a 15 yr old girl who has been suffering with ocd and anxiety for 4 yrs and was wondering if there is any care centers specifically for ocd

the reason im saying this is my daughter went into a young persons mental health unit and it didn't work for her, there was a lot of kids in there but all had different problems which made her issues worse

and that got me thinking if there was any centers specifically for ocd?

im also at a loss at what to do next because my daughter has tried cbt and dbt and feels it doesn't work, she used to self harm but has stopped which is great but she still hits her head off walls ect... to get rid of the intrusive thoughts, its heartbreaking for me to hear this I really need some advice on where to go next, she is at cams but it feels like nothing is being suggested or done to help her with her anxiety and intrusive thoughts

can I also ask if anyone has tried hypnotherapy if so I would love to hear how it went.

also is there any financial help with those sufferers who have children who wash and shower multiple times a day and use hand sanitizer ect... because im trying my best but financially im struggling.

any advice is welcome :original:

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I can only speak to hypnosis. It is not going to make the thoughts stop. I've never seen a positive story in that regard on the forum. It can help you to learn to relax, but the problem remains.

CBT with an emphasis on ERP is the gold standard treatment.

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Guest Mickymouse

The only financial help I can surggest is if you can claim what was called Disabled living allowence,now PIP. But things have to pretty severe to get anything out of them. As I recently told someone else,sometimes the water companies have arrangements for disabled or special needs people/problems.

I know what you mean about soap etc,ours costs a fortune with handwash,tissues,wipes,continually clean clothes and clean towels evey time he washes his hands. Thankfully he does get PIP.

As for hypnotherepy,our son said he wanted to try it and his phycologist said if he wanted to let him. Well he did and it was more like counselling and he had homework. He gave up after about six sessions. When we told his phycologist she said to him"what did you expect her to do? Put you to sleep like they do on TV?" Not best helpful but as with most things different people can get different results. Not sure if you can get on NHS,worth asking GP tho.

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Guest Sally44

I think it would be useful to make an appointment with citizens advice and get a benefits check.

As well as DLA, now PIP - there is also Carers Allowance and also the Disability element of working/child tax credits. Citizens Advice would also be able to give you advice about utility bills.

But you really need someone to be delivering a CBT programme with your daughter, and possibility some medication for anxiety as well. Usually that is via CAMHS. I am assuming they have been involved before for her to have spent time in hospital?

The Maudsley hospital in London do specialise in OCD in children along with other co-morbid diagnoses. They will assess and put together a therapy programme. You would need to ask for a referral to them. It might be an idea to speak to them first. And also to speak to your local hospital PALS [Patient advice and liaison service] incase your request for a referral is refused, and on what grounds. PALS helped us challenge a refusal to assess and deliver therapy to our son, and we won that challenge.

Is your daughter in school at all? The reason I ask is because any therapy/strategies used need to be delivered consistently and constantly both at home and in school.

And the reason to try to get this set up NOW is because when she becomes an adult it is much harder simply because professionals take 'her view' of what she wants rather than listening to parents and what they want for their child. And for some with OCD they can refuse help, therapy and medication because of fears relating to OCD and standing up to it.

Edited by Sally44
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Guest marie13

thankyou for all your help, polar bear , ive never heard of erp but will mention it to her counsellor, and I thought hypnosis was like they put you to sleep and take away the problem but I guess its not like that :(

sally and mickeymouse hi I applied for pip, living disability but no luck so have just left it for now

my daughter has unfortunately been out of school since 14yrs old her anxiety started when she went into senior school and the bullies started, it got sorted but by then her anxiety and stress and ocd had took hold, her ocd started at senior school and got worse and worse were eventually she was transfereed to another school as a fresh start but 6 months later and more bullies she was excluded because of a bully who tormented her she didn't even know him, he was name calling and making her feel like general ****

she didn't even make eye contact, the school warned and warned him but he still didn't stop then and one day she went to her councellor for therapy and told her that if the bully didn't stop she was going to stab him, so the therapist contacted the school as they have to so then she was excluded temporarily until a meeting took place and they decided that she may be a risk to the school, I was asked do you think she may do it and I said possibly if he doesn't stop, im not in her head so I cant say if she would or wouldn't

so they decided to exclude her permanently, she then had a bit of home schooling and then they said they had a place for her at a place for excluded children who were anxious, but what they don't tell you is there are violent anxious children mixed in with non violent and anxious children so you can imagine, she stayed there 2 weeks, then was at home until December last yr when things got so bad and she was a constant risk of suicide, the medication she was on was 200mg sertraline it sort of helped with her ocd but the intrusive thoughts and self harming kicked in really bad and made her unable to even to think sensibly so bad as I couldn't cope she was put in a residential care home ,she came off the tablets and has changed dramatically in 4 months she has calmed down and next week is ready to come home I just want things to be better for her she is 16 in October so hopefully maybe college or something x

Edited by marie13
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Hi Marie. My son left school about the same time as your daughter. He had some home schooling and actually chose to go to college and do maths and English GCSE when he was about 19. It was very part time and the college were fantastic. A place to go if he was anxious, extra time and his own room for the exams and he could even have had a volunteer sit in with him in the lessons if he had wanted one. So different to school!

You say she is in a residential home, but coming home next week. Have they managed to get some of her rituals under control whilst she is there? I too applied for what was DLA for my son. I was told to fill the form in as though it was the very worst day. We too were turned down and I should have appealed as most people on here who have it have had to appeal. May be think about applying again some time. I believe there is help from the water companies.

Have CAMHS put something in place for when she comes out? Has other medication been considered to go alongside CBT? You mention she has a counsellor. Is that person experienced in OCD? You will be surprised how often they aren't!

My son tells me we can't possibly understand what it is like and that is so true, its impossible, as to us its all so illogical. OCD takes control of everything so I did try to give my son as much control of his life as I could. I would sit down in a calm time with your daughter and ask her what she wants (obviously to get better) and help her try to achieve that. She has to engage in the CBT for it to work and I was wondering if you have been involved at all? If you could go into a session, even for 10 minutes, whilst the counsellor explains to you and her how you can help her challenge her OCD, it would be helpful.

I dont know what your daughter's intrusive thoughts are about, my son's are responsibility. They make him believe he is responsible for everyone and everything in his life. Even though its hard for us to understand, I do realise it takes a huge amount of courage to challenge a thought which tells you for example someone you love is going to die if you dont do whatever it is the OCD is telling you to do to protect them and then if something does happen to someone (as is inevitable in life) you believe its your fault!

I really hope coming home is a fresh start for your daughter in her road to recovery. My son's psychiatrist has always advocated exercise as being helpful. He has recently taken up mountain biking and says its the one thing that gives him relief as he has to concentrate so hard he doesn't have time for OCD thoughts! We aren't sporty people, but may be something might take your daughter's interest.

Carol x

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Guest Sally44

I would definitely recommend reapplying for PIP/DLA.

Speak with citizens advice to see if there is an organisation that can help you complete the forms. If she is hospitalised and out of school that shows the severity of her condition, and you should definitely get PIP/DLA. Also apply for Carers Allowance. And once you have CA or DLA see if you can get the disability element of Working/Child Tax Credits.

My son also has autism, and we get the high level of Care and Mobility. Mobility was harder to get, but we were able to prove that due to his autism and OCD that although he 'could' walk, he actually could not due to OCD, ASD and Anxiety. We were practically housebound for a year because he would not leave the house. He would not walk on the pavement. He would not get onto a bus. So we needed a car. Now I am using a motability car to drive him into school every day, which is is 2 hour round trip. Without the car he would probably be out of school too.

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