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MAYA

Bulletin Board User
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    7
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  • OCD Status
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  • Gender
    Female
  • Location
    BOURNEMOUTH

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  1. Hi PolarBear It was fairly sudden onset. Bit hard to tell as he is very ritualistic due to his Autism. It thrilled me to see you call yourself an Ex-Sufferer. Seems there is hope x
  2. Yay! So happy to read this, as I've just booked us 3 days camping.If it improves things I'm defo moving into our tent!
  3. Ashley, He has always had very strong ritualistic behaviours since the age of 14 months. We had grown very used to them. Approx 1 year ago he had a very stressful time within the school setting and entered a phase of acute panic with time off school. A very short time after, we noticed that when took him out he kept having to go back again and again to touch things repetitively. He would constantly swivel his eyes up to the right hand corner of a room. He refused to look at books or any written material and sometimes ran out of the classroom. We were perplexed but assumed it was the tic disorder. The Psychiatrist diagnosed OCD and he was able to explain all his compulsions...ie; needing to retouch everything he has just touched, having to cleanse any surface that anyone has touched with an imaginary blue laser, not being able to be in the same room as the number 6 and probably 20 things more. It's so bad now that we had to restrain him when he gets out of the car as he needs to run continuously back to it to touch the door handle. And he is being carried up and down stairs. He won't walk at all unless he has his eyes closed and someone is holding his hand.
  4. Thank you so much for this info! It makes me feel I have more power with the Psychiatrist. She's very supportive but since he didn't tolerate CBT, I just assumed she'd reach for the prescription pad again. I didn't have a clue these clinics existed.
  5. Thank you so much for this info! It makes me feel I have more power with the Psychiatrist. She's very supportive but since he didn't tolerate CBT, I just assumed she'd reach for the prescription pad again. I didn't have a clue these clinics existed. ps, just getting the hang of posting on here
  6. Thank you so much for your replies and kind words. Unfortunately, there have been a few issues at school. He was roughly handled by a teacher ( resulting in a change of class) last year and I do wonder if that was a trigger. Nothing has changed at home. I know we are very lucky that he is supported by such a great team and we have great working relationships with the Psychiatrist and Psychologist, who we have on speed dial. However, as he is uncooperative in CBT, I don't know if increased medication is the only route? As an NHS nurse, I'm wary of many of the typical drugs that are prescribed. As a small child he developed a walking refusal, apparently can happen in Autism, and he is now starting to struggle with walking again. Needing someone to be behind him and supporting him. He keeps having to step backwards and sideways and stairs are particularly dangerous and challenging. I'm terrified of him going back to school as its an ancient building with steep cement staircases. I'm desperate to find some resolution before he returns. We were going on holiday to France today for a week, but it's impossible. His OCD is so intense he doesn't enjoy any activities any. more. What are the chances it's just an intense relapse and will resolve or improve???
  7. Hi all. Wondering if anyone has any feedback/ advice to give me or is going through something similar? Son is 13, diagnosed with Classical Childhood Autism at 2, attends school for children with complex and profound learning disabilities. Also diagnosed with Panic disorder and Tic disorder 6 years ago. Under care of CAMHS, Psychiatrist and Clinical Psychologist since then. Started on Sertraline 6 years ago, but we have refused Aripiprazole for the tics as he has coping strategies. He has been verbal since the age of 6. Massive deterioration in behaviour 1 year ago and diagnosed with OCD. Didn't tolerate or participate in his CBT sessions so they were abandoned after the 5th session. Sertraline has been increased months ago but we are now at crisis point. Repetitive touching of surfaces, unpleasant, often violent thoughts, needing to leave the room if certain words or numbers (many!!) are seen or heard. Constantly needing to "cleanse" surfaces if they have been touched, with an imaginary blue laser. He is exhausted, depressed and losing weight from continuous movement and lack of sleep and needs 24 hour supervision for safety. We have the psychiatrist next week and what can we expect? Will it really be just more meds?? Really appreciate any ideas xx
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