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Living in hope

Bulletin Board User
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    Female
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    Kent

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  1. It is fantastic that OCD-UK are considering doing this project next year to offer more support to parents coping with a child with OCD. This is exactly the sort of help our family have so desperately needed over the past year whilst going no where fast with the NHS and CAMSH system and in that time having to watch your child’s symptoms escalate out of control. It has been devastating for us as a family and also nearly impossible for us (as a family) to live with at times. My first priority - advice and direction to parents how/where to seek help. We wasted months in the beginning going round in circles as our GP fobbed us off and told us the school needed to do a referral to Early Help to access CAMSH and the school said the GP needed to do this referral. Also guidance as to how to access therapy privately would be helpful which is what we’ve had to resort to now. If only we had realised what the CAMSH wait time was going to be like as we would have gone privately for therapy months ago. Second priority - An NHS/OCD-UK workbook for parents of children awaiting therapy would be fantastic. How to support your child without feeding the OCD!! Our sons OCD has probably got 50 times worse (whilst we were waiting in the system) and despite our best intentions, our actions have probably inadevertently allowed this as we did not had the tools or understanding to prevent this. Third priority - a regular local support group or drop-in service with NHS therapists would be invaluable and these forums are also very helpful.
  2. Hi Paulfoel - really pleased to hear your son is doing better now. Fingers crossed it will be onwards and upwards for you all. I’d be really interested to hear how his progress continues. Totally agree how scandalous the NHS mental health services are and this is particularly bad when it comes to children and young people. If only the NHS could see that earlier intervention would help people (and the NHS) in the long run - surely that’s not rocket science!
  3. Thank you everybody for your helpful advice and it’s such a relief to hear from others with first hand experience of this horrible condition. I thought I’d ask the question about homeopathy but deep down I already knew the answer but just want to make sure we do not leave any stone unturned so to speak. Things are starting to happen now we are going private and we are hoping CBT with start within the next 2 weeks. Think we will see how our son responds initially to the CBT before rushing on the medication side of things.
  4. Thank you for your advice I do appreciate it. I thought I’d ask the question but deep down I already knew the answer and I won’t waste what energy I have left on this!
  5. Really feel for you at the moment as your family are clearly having such a tough time and I can totally relate to everything you are going through as we are in the same boat with our 12 year son. We have had to watch our son get worse day by day waiting an eternity for the CAMSH assessment only to be told he needs CBT treatment but there is another long wait list for tr treatment. We couldn’t wait a day longer as our family unit and are at breaking point so we have gone private but still had to wait 4 weeks for a psychiatric assessment and now waiting for treatment to start. At least things are starting to happen which was my biggest frustration with CAMSH. If you can somehow afford to go private do it. My biggest regret is that we didn’t do this ages ago before my sons problems got so bad, as now there are so many more issues to unravel. The mental health services within the NHS are a total disgrace!!!
  6. Our 12 year old son has a couple of weeks ago been formally diagnosed with moderately severe OCD but let’s face it we already knew this and didn’t need a physiatrist to tell us that. Looking back he has always had his ‘odd’ ways since he was young but it has escalated out of control since he started at secondary school last year. We have given up on CAMSH because of the long wait list for CBT treatment and have now gone private before this horrible illness drives us all totally insane and it is breaking my heart to see how much he struggles day by day. He fears germs and contamination and he now struggles to go to school, has now isolated himself totally from his friends and family members, we can not go in his room or touch him and he is constantly fearfully that we may have ‘brushed him’ . We are hoping CBT can start in the next couple of weeks but we have also been asked to consider SSRI medication. Whilst we are desperate to give him whatever help he needs, we are concerned by the potential side effects of medication. I’ve started googling homeopathy but am I clutching at straws??? Any helpful advice would be gratefully received please
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