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Horizon programme repeated tonight.


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Guest Tricia

It will obviously take refining and those severe enough, and wiling to undergo it, will help in that process.

The good news is that it has already given many people a life free of the worst of their OCD.

Edited by Tricia
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I think the programme would spook me, and currently my therapy is going well, so I shall leave it to the stronger-minded, and continue working my therapy.

But if the programme helps bring more and more peoples' awareness knowledge up, that is great.

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I watched the program yesterday and it was really good and accurate in explaining just how serious and bad ocd can be for many of us sufferers, and it went on to explain that celebrities who just like things lined up have not actually got ocd

It was also interesting in giving you the latest ocd research etc

Edited by SnookerTable
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Well I actually got an ocd trigger from a documentary about ocd!!!. When it showed the mice. I really cannot win can I!!!

I got triggered by it too. After watching the poor guy with the contamination fears I'm starting to obsess over whether might end up like that and I'm obsessing over the way I wash my hands and how many times I do it and things like that. Oh well! :/

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Great programme .

But the testing on animals bit :-( :-( :-( I was gutted beyond words with :-(

Just my personal opinion

Glad they edited and didn't show the dog part on tv :-(

Edited by Eddy
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Guest AnnieX

Trying not to be too emotional but be realistic .

The programme possibly made those who refer to " I'm abit ocd " think about what ocd really is.

But some aspects of ocd were not addressed .

The operation oh my ... I can't put my feelings into words for so many reasons ....

If all it is is our brains then why can't we fight our thoughts ...... The lady who had the operation if I interpreted it correctly was triggered by " a bad breath comment " .

Yet is still fighting it .

A trigger can surely be reversed. If we as sufferes are offered the correct help .

I see in programmes like this ocd traits that i don't even acknowledge in life " oh my god that's what I'm like ". Any programme that makes me feel like that is a step in the right direction .....

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Guest Tricia

The operation oh my ... I can't put my feelings into words for so many reasons ....

If all it is is our brains then why can't we fight our thoughts ...... The lady who had the operation if I interpreted it correctly was triggered by " a bad breath comment " .

Yet is still fighting it .

A trigger can surely be reversed. If we as sufferes are offered the correct help .

I don't think a trigger is always possible to reverse, but clearly that comment to Nanda about her breath would not have led to her being this ill had she not been predisposed to OCD, and something else was likely to have triggered it at some point.

Once something is ingrained in the mind, it's very hard to shift.

good ocd by sufferers , woeful plop re dbs ,

I was very pleased they showed the surgery, but sorry Nanda has not benefitted more. There's still time, though. It's early days.

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good ocd by sufferers , woeful plop re dbs ,

Absolutely Legend....

The message to me that came across loud and clear is that surgery is not helpful, CBT is.

Frequently I get people who come along to the Worthing support group who say that CBT hasn't worked for them. My advice is always that CBT does work when the therapist is right. Also, people often think they've had CBT when in fact they've had counselling. Or ERP with no CBT. I have a great deal of respect for counselling and in the right context it's very useful. But not for OCD.

I think people often get lost in treatment because it's not made clear to them what therapy they're actually having, how it will work, and what they'll be able to achieve with the right help. That's not their fault, nor is it indicative of how severe their OCD is. It's just that the therapist isn't right for the patient.

Surgery for OCD in my opinion is like trying to use a sledgehammer to crack a nut. And missing by a mile.

*steps down from soapbox and meanders away....*

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Guest Tricia

There are those who are now alive and functioning normally thanks to DBS. That is a fact. Many people have had excellent CBT in specialist units, and been totally committed to it, and have not improved. Fact.

I am not for one moment saying we should avoid CBT as obviously it's the first choice - and second. It's the best therapy on offer at the present time, but please don't totally dismiss surgery. It has saved lives - unlike a sledgehammer...

Edited by Tricia
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I'm not dismissing surgery outright, I don't know how it fares for other mental health problems. In fact I met a psych from the royal college of psychiatry who said if he had severe clinical depression he'd consider surgery like a shot.

The results of people who've undergone DBS for OCD haven't been overly compelling as evidence in my opinion. Given the risks and possiblity of long term side effects, I just don't think it's worth it. Who knows in the future what will happen, but I think it's not good enough yet.

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If you look at the history of medicine throughout the years , I am sure , for example, early heart surgery seemed crude and a failure at first , and our ancestors would have laughed out loud at the thought you could actually take a heart out of one person and put it into another !

Nowadays heart surgery is pretty standard proceedure , but back then it would have been ludicrous to even think it possible .

Thankfully innovative medical pioneers pressed through , and remarkable advances in medical proceedures have been made and we are who we are as a human race because we continue to pioneer through medical breakthroughs .

In years to come surgeons may have perfected these early crude brain techniques in helping people with ocd and another way may become the norm . We are perhaps people who will make history . We are on a journey through medical discovery .

Lets hope so .

I am sorry to say that even "the right" cbt does not work for everyone , ( though I am happy it seems to help many) . To date no follow up research has been done on a large scale as to the statistics for ocd staying away for a life time of those initially helped by cbt .

Yes it may stay away for 5 years after cbt ..... But when you mother dies , or your wife leaves you , does it still stay away ?

No research has been done on the longevity of the effectivness of cbt , so even that may have its limitations ?

Not to dis cbt , but we need to be flexible in our thinking about anything and everything that can help us in the struggle with ocd .

Just my personal opinion :-)

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I know what you're saying about this history of surgery, of course we're moving forward with what we can do (hopefully ;-p)

But faced with 2 therapies that aren't a guaranteed cure, give me the one with the least risks and the one that gives me techniques to deal with symptoms if they rear their ugly head again.

It'd be really interesting to get Prof Salkovskis' thoughts on this.

Edited by Claire1704
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I personally think its always good to have different opinions from different experts . Broard spectrum . That way all schools of thought can be represented . And I feel reassured if sometimes experts disagree , as I feel comforted that at least all these people who are looking after us are considering all angles to help us. Almost like a second opinion and sometimes a third or fourth :-)

I think in one way we have come a long way .....and i think in another we have almost not come anywhere.

I must have read probably 30 books on ocd over the years , but the one that floored me to the ground , was a really early edition of a nurses handbook that my nan had over 85 years ago when she started nursing .

Its almost like a medical dictionary with a few lines on all things medical ...... It had ocd in there and I was astonished at the concise , yet incredibly acurate description of ocd in there.

Must dig out the book , but I was impressed with the author seeming to have grasped exactly what ocd is , so many years ago .

What ever method of treatment you guys choose ...I pray it helps you . :-)

Bless you guys x

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