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Tomorrow afternoon about 2:20pm Sky News will be featuring a segment on OCD about Pure O and the problems some with certain aspects of Pure O face when trying to access treatment.

I have not seen it, but I have been working with Sky on this on and off for a year or so now, and one NHS IAPT service may come in for some criticism, we currently have an ongoing complaint to the health ombudsmen about the IAPT service.

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Guest vicium artis

I always emphasized the fact that pure O does not exist.You know i also have been diagnosed with "idea praedominanter obsesiva ruminationes" what in latin means that i have no compulsions which is mistaken.There are behavioral compulsions and mental ones. So in this categorization of anxiety and anxiety related disorders they should pay attention with this title because many of us have pure o and then at the begining we are stuck with the title because we only heard about washing ,cleaning and checking in media and books but this is not proper title.

I had this conversation with my psyhologist and she agrees that is misunderstood.Because all actions are in the head and people come and see and they think oh no..we have something else..they wash and clean and check but i dont have external manifestations and then they are suspicious about diagnosis.

It is all OCD and only should be explained that mental compulsion really exist and they are strong like the one we see.

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Tomorrow afternoon about 2:20pm Sky News will be featuring a segment on OCD about Pure O and the problems some with certain aspects of Pure O face when trying to access treatment.

I have not seen it, but I have been working with Sky on this on and off for a year or so now, and one NHS IAPT service may come in for some criticism, we currently have an ongoing complaint to the health ombudsmen about the IAPT service.

Well done Ashley. Getting proper info about OCD out through the tv medium has been a long time coming.

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I always emphasized the fact that pure O does not exist.You know i also have been diagnosed with "idea praedominanter obsesiva ruminationes" what in latin means that i have no compulsions which is mistaken.There are behavioral compulsions and mental ones. So in this categorization of anxiety and anxiety related disorders they should pay attention with this title because many of us have pure o and then at the begining we are stuck with the title because we only heard about washing ,cleaning and checking in media and books but this is not proper title.

I had this conversation with my psyhologist and she agrees that is misunderstood.Because all actions are in the head and people come and see and they think oh no..we have something else..they wash and clean and check but i dont have external manifestations and then they are suspicious about diagnosis.

It is all OCD and only should be explained that mental compulsion really exist and they are strong like the one we see.

reasurance seeking ? avoidance of fears ? googling ?

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Guest vicium artis

I dont need reasurance,avoidanve or conditioning also not,googling hmm..not anymore.You see i am a healthcare professionalist,i have bachelor degree(bacc.therap.occup.)and also i am medical tehnician.I am not here to play with you and leting you to put me all those labels you mentioned above.

Maybe you have academic titles in al of those but dont categorize people.And try not to be off topic..?

Did it disturb you what i have written about pure O..?

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I always emphasized the fact that pure O does not exist.

We pretty much say the same thing on our website and I have said it here many times, but the whole idea behind the feature was to highlight the fact it can manifest itself without 'obvious' compulsions which then is missed by some mental health therapists.

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Guest vicium artis

We pretty much say the same thing on our website and I have said it here many times, but the whole idea behind the feature was to highlight the fact it can manifest itself without 'obvious' compulsions which then is missed by some mental health therapists.

Thank you for your reply.I have heard that england is very good in OCD treatment.So i believe that CBT therapy can be given via family doctor..i mean prescribed and then you go to psychologist.Here we mainly pay privately and it costs a lot.

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I dont need reasurance,avoidanve or conditioning also not,googling hmm..not anymore.You see i am a healthcare professionalist,i have bachelor degree(bacc.therap.occup.)and also i am medical tehnician.I am not here to play with you and leting you to put me all those labels you mentioned above.

Maybe you have academic titles in al of those but dont categorize people.And try not to be off topic..?

Did it disturb you what i have written about pure O..?

as an ex sufferer of ocd , no. Ocd is ocd , same meat , just different gravy. However for some compulsions are less obvious to an unknowledged person , a good therapist of course would and should understand the ocd if its fully disclosed

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Guest vicium artis

as an ex sufferer of ocd , no. Ocd is ocd , same meat , just different gravy. However for some compulsions are less obvious to an unknowledged person , a good therapist of course would and should understand the ocd if its fully disclosed

i could not agree more,no sarcasm ;)

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I thought it was fairly well done. It opened the door to understanding that OCD is not just about washing hands. I especially like the story of Alex, one of the people who was misdiagnosed because of pedophile obsessions.

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I thought it was fairly well done. It opened the door to understanding that OCD is not just about washing hands. I especially like the story of Alex, one of the people who was misdiagnosed because of pedophile obsessions.

i thought it was a momentous day for ocd awareness , sky tv got it spot on . still plop access to correct cbt for many though .

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still plop access to correct cbt for many though

.

Absolutely!!
The only true, readily available way to have choice (as we're lead to believe we have) is down the private route at £100 per session and then you don't know for sure until you've blown £500. The rest is pretty much a lottery....in my experience!
Sorry to be a party pooper but effective treatment isn't easily accessible for all, unless you maybe live in the South/London area
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I thought it was fairly well done. It opened the door to understanding that OCD is not just about washing hands. I especially like the story of Alex, one of the people who was misdiagnosed because of pedophile obsessions.

I have been working on this with 'Alex' for 18-months now. Myself and Paul stopped for 90 minutes in the middle of a field one day when cycling around Northern Ireland in 2014 to speak to the independent psychiatrist (who thankfully was very open to the feedback from myself and Paul).

I accept sometimes mistakes happen, but with this particular case the original IAPT service that made the mistake have still to this day refused to accept it, and have insisted they would carry out the same process in the future. We simply wanted them to hold their hands up and say they have learned so the next Alex would not suffer the same but they refuse to change their policy, so we have now escalated to the health ombudsmen with all NHS avenues exhausted.

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.The only true, readily available way to have choice (as we're lead to believe we have) is down the private route at £100 per session and then you don't know for sure until you've blown £500. The rest is pretty much a lottery....in my experience!

Sorry to be a party pooper but effective treatment isn't easily accessible for all, unless you maybe live in the South/London area

I am not sure I fully agree with you. You are right in that there are problems for many people accessing quality treatment, and that is something we need to change and will work hard to change for as long as our members want us to. However things are changing for the better, just very slowly. In fact there is now a NHS specialist available in Newcastle for the people of Northumberland, which is a large catchment area. Admittedly we still need more specialist services in the north and elsewhere too, although I know Paul does therapy sessions with people all over the UK where him going to them is a requirement. There are also local OCD clinics (not quite specialist) in Sussex, Nottingham and Sheffield.

We need such services in every area of the UK, and maybe that will happen in time, but in England at least the picture is not totally bleak.

But, yes you are right for many people if you want specialist OCD treatment then you may in most cases have to be prepared to travel south for it, that is not ideal but if it leads to an improved quality of life or even freedom from OCD I think some short-term travel discomfort is worth it.

In terms of paying for the best, you could spend £5000 and still end up with rubbish therapy Caramoole, so it is a lottery privately too unless a person does their homework to find a specialist of course. But, equally specialists are available via the NHS (admittedly it is hard, but not impossible to access and again we can help people with that).

If anyone reading this is struggling to access quality therapy through the NHS, shoot me an email and I will try and explain options open to you.

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Guest vicium artis

I think misdiagnosing is also part of bad statistic and sometimes equally the sufferer can not express verbally and consostenly what is bothering him and the other one is very superficial and those ocasions are bad PR for specialist.

When i was 18 i was diagnosed properly but he never told me what this means.I still was a monster in my head with all those intrusive sexual content, same thing POCD.My friend was also misdiagnosed because of violent content toward her parrents that she has SCH, and that diagnose which is wrong was made in ER.

When those factors combine together then you have negative outcome,bad experience and you lost will to go on.But awareness is here,the right one.In media people who have ocd cleaning for popularity of the shows is nonhuman.

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.

Absolutely!!
The only true, readily available way to have choice (as we're lead to believe we have) is down the private route at £100 per session and then you don't know for sure until you've blown £500. The rest is pretty much a lottery....in my experience!
Sorry to be a party pooper but effective treatment isn't easily accessible for all, unless you maybe live in the South/London area

and why do people often have to come to a ocd charity and be given advice , very often on how to access treatment ......what about those who dont

know the "system" or have interaction with ocd charitys

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and why do people often have to come to a ocd charity and be given advice , very often on how to access treatment ......what about those who dont

know the "system" or have interaction with ocd charitys

Then it is the job of this charity and my fantastic volunteers to try and reach out to those people and ensure we inform people about their options the best we can through work like OCD Awareness Week. In fact just today our ittyk/Kirstie spoke about her OCD to the Scottish press.

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Guest vicium artis

A good film my son and I thought, just a shame the usual trolls have to make stupid comments causing OCD doubts to creep in.

Well i think there is no such thing as a forum without trollers and spamers but i dont see why we should judge those.In one situation we are spamers and in another on topic.

As much as i am aware that awareness should be in media i still have issues with "pure O" formation.

But hey maybe it is my ocd ;)

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