Phili Posted September 4, 2018 Share Posted September 4, 2018 What the title says. Apparently one of the reasons why everything, including my therapy, was so inafective. Anyone else here also Autistic, this is all very new ground for me. Link to comment
Guest OCDhavenobrain Posted September 4, 2018 Share Posted September 4, 2018 It could be that it is harder to recover from OCD when having autism because of rigid thinking due to autism but DO NOT think that it is impossible! Because it is NOT I don't identify as having autism even if I have got the diagnosis once.. So i can't tell you my experience but I know here are many good members who can talk about the specific question. Link to comment
bruces Posted September 4, 2018 Share Posted September 4, 2018 How did they confirm your autistic? Link to comment
Guest OCDhavenobrain Posted September 4, 2018 Share Posted September 4, 2018 Yes i should have said that too. Do you feel at home with the diagnosis? Link to comment
Phili Posted September 4, 2018 Author Share Posted September 4, 2018 I think the diagnosis is very accurate and I had several tests by the local specialist teams. I’ve known for ages that there was something more wrong with me than OCD Link to comment
Lost_in_a_Dark_Maze Posted September 4, 2018 Share Posted September 4, 2018 I'm so glad you have found the answer. Hopefully now you will receive the right support. I have never been tested, but for a long time I have felt there is something more than OCD wrong with me, and considered an ASD. I can certainly relate to a lot of what I read. Link to comment
Em00 Posted September 4, 2018 Share Posted September 4, 2018 I am autistic. I've had ocd since childhood and definitely think it makes things harder dealing with lots of rigid thinking. Doesn't mean I don't stop trying I hope having the diagnosis helps you understand yourself. I was relieved when I got mine as so much fell into place. Link to comment
Caramoole Posted September 5, 2018 Share Posted September 5, 2018 What's been offered as a plan of action to help.....or haven't they got that far yet? What support's in place at the moment? Who are you seeing? Link to comment
dksea Posted September 5, 2018 Share Posted September 5, 2018 8 hours ago, Phili said: I’ve known for ages that there was something more wrong with me While I don't have autism I've had some experience with people who do. Its true that being on the autism spectrum affects how you will experience and interact with the world around you, but I encourage you not to think of it as something being "wrong" vs just being different. Hopefully having the diagnosis and learning more about it will help you feel more comfortable in life. Link to comment
cookiemonster Posted September 5, 2018 Share Posted September 5, 2018 Having a diagnosis is the first step to making a recovery. Best wishes Link to comment
Wonderer Posted September 5, 2018 Share Posted September 5, 2018 My son has autism, he’s 11 and therapy for his OCD is proving to be difficult for him and he’s having very slow progress, I am suspected autism and I am pretty sure I do have it, I’m recovered from OCD atm so it can be done xx P.S there is nothing “wrong” with you, don’t think like that, it’s so negative and will be detrimental to your mental health.x Link to comment
Phili Posted September 6, 2018 Author Share Posted September 6, 2018 On 05/09/2018 at 04:01, Caramoole said: What's been offered as a plan of action to help.....or haven't they got that far yet? What support's in place at the moment? Who are you seeing? I have a CN who visits about once a month, if I’m lucky. She gives me pages to colour in. Um, lady from Gwalia who deal with housing and bills comes every week even though she doesn’t really have anything to do, she is trying to stay with us because she wants to help. The dietician is waiting for my Autism diagnosis to be on paper as they has to change tack. The other Autism lady will be visiting again, that’s it. Oh my GP but she retires in six months and the surgery is closing. My period is still going and I have to have tests if it is my the end of September Link to comment
Orwell1984 Posted September 21, 2018 Share Posted September 21, 2018 Hi Phili welcome to the club. Having OCD with autism absolutely sucks. I don't know what else to say except I completely understand why your therapy attempts didn't work. It's different for us and I don't know what else to say. The anxiety does not go away or diminish despite exposure. It absolutely sucks. Mindfulness and acceptance and self soothing are the only ways forward. I'm sorry Link to comment
Guest OCDhavenobrain Posted September 23, 2018 Share Posted September 23, 2018 On 22/09/2018 at 00:03, Orwell1984 said: Hi Phili welcome to the club. Having OCD with autism absolutely sucks. I don't know what else to say except I completely understand why your therapy attempts didn't work. It's different for us and I don't know what else to say. The anxiety does not go away or diminish despite exposure. It absolutely sucks. Mindfulness and acceptance and self soothing are the only ways forward. I'm sorry Could you explain more what you mean when you write that "the anxiety does not go away"? I know that people with ASD tends to have anxiety and depressions but the anxiety from OCD can be removed. Do not be harsh on yourself. Evan if I can understand your negativity about it. I guess the rigid thinking is the biggest problem when it comes to OCD+ASD? Link to comment
Wonderer Posted September 23, 2018 Share Posted September 23, 2018 On 21/09/2018 at 23:03, Orwell1984 said: Hi Phili welcome to the club. Having OCD with autism absolutely sucks. I don't know what else to say except I completely understand why your therapy attempts didn't work. It's different for us and I don't know what else to say. The anxiety does not go away or diminish despite exposure. It absolutely sucks. Mindfulness and acceptance and self soothing are the only ways forward. I'm sorry This isn’t necessarily true, all people on the spectrum are different, my son is doing a thousand times better than he was last year, his anxiety is so much less than it’s ever been. I mentioned before I’m suspected Aspergers myself, I am OCD free and 90% anxiety free at the moment myself! Please don’t write yourself off as never getting better, you CAN! X Link to comment
lostinme Posted September 23, 2018 Share Posted September 23, 2018 Take inspiration from how far Wonderer and her son have come, they’ve done absolutely amazing and they’ve come so far, so change is possible Link to comment
Wonderer Posted September 23, 2018 Share Posted September 23, 2018 41 minutes ago, lostinme said: Take inspiration from how far Wonderer and her son have come, they’ve done absolutely amazing and they’ve come so far, so change is possible Thank u so much lost xx Link to comment
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