My son, a promising mucisian developed hyperacusis with pain following viral meningitis at 18. 3 years on the anxiety with it has increased and has been diagnosed by therapsts as OCD (fears "catching" another illness) and PTSD. It's complex because he has a genuine physical pain from sounds but been told it's alot pshychological. He took an audiologist literally who said sound is cumulative and "all" sound damages our ears. He pretty much lives in his room and increasingky avoids all noise except contradictorally can practise singing and listen to own music on very low. He communicates with me mostly by messenger asking if it is safe to go to the bathroom as it is above the kitchen & could not if one of us were to boil a kettle ir microwave.
From the start because of pain we as parents made many adaptations e.g fitting a fire door to kitchen to dampen fridge vibration noise .
I started to take his food upstairs & eventually it has become that I have to leave it in my room and message that we are eating so no one comes out and disturbs him. it's got so that if we make a "mistake" he gets very angry ir upset saying we have damaged him. I have been told I have made him worse with all this anwering of questions and inclined to believe. but he literally begs my help. I no longer hoover or shower (says water pipe noise hurts ) unless he is out which is pretty much just psychology appointment which he rather not go to.
His Dad agreed with cbt to undo these safety measures gradually and II think its right but simply can't bear refusing so now am covering uo tge fact that I go and switch off a switch for him ( that is close to the floor & if there was a noise below it will damge/ hurt him ) etc. I am therefore colluding with him and reinforcing his fears. How do I stop ?
So many more examples & know it doesnt sound so much ocd but he does do long & timed bathroom rituals & gives himself targets like must write a song a day for a month and berates himself if fails. sorry its long & seeing it written out seens even more ridiculous