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Janejay

How does the CAMHS waiting list work?

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I’ve just been told over the phone by Derbyshire CAMHS that my daughter should get an initial assessment in the next 1-2 weeks. 

I asked what that meant in terms of how long she needs to wait for treatment and the nurse wouldn’t say. Just said I’d have to wait for that call. I don’t understand what the process is to be seen. What’s likely to happen next? Does this mean she’s now about to start treatment? Or are there more hoops to jump through first?

Can anyone help explain how this works?

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Hi Ashley 

I’ve just spoken to Tilly about the options you suggested for treatment and she’d like to try getting referral to the specialist centre in Oxford. Can you get in touch to explain what I have to do next please?

 

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Hi Janejay,

The first step is to ask the GP to make the referral via the Derbyshire CCG to the Oxford OXICPT clinic - https://ohspic.web.ox.ac.uk/info-referrers  Effectively, encourage your GP to send the referral to the CCG.  Some reasons the GP can include for justification:

  • Not able to access local therapy (despite repeated attempts)
  • Advised a minimum of 9 month wait for treatment
  • Derbyshire does not have a specialist OCD team (as recommended by NICE Guidelines in 2005) - confirmed by Ashley Fulwood of OCD-UK (Derbyshire based)

 

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1 minute ago, Ashley said:

Hi Janejay,

The first step is to ask the GP to make the referral via the Derbyshire CCG to the Oxford OXICPT clinic - https://ohspic.web.ox.ac.uk/info-referrers  Effectively, encourage your GP to send the referral to the CCG.  Some reasons the GP can include for justification:

  • Not able to access local therapy (despite repeated attempts)
  • Advised a minimum of 9 month wait for treatment
  • Derbyshire does not have a specialist OCD team (as recommended by NICE Guidelines in 2005) - confirmed by Ashley Fulwood of OCD-UK (Derbyshire based)

 

Thanks that’s great - really helpful 

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2 hours ago, Janejay said:

I’ve just been told over the phone by Derbyshire CAMHS that my daughter should get an initial assessment in the next 1-2 weeks. 

I asked what that meant in terms of how long she needs to wait for treatment and the nurse wouldn’t say. Just said I’d have to wait for that call. I don’t understand what the process is to be seen. What’s likely to happen next? Does this mean she’s now about to start treatment? Or are there more hoops to jump through first?

Can anyone help explain how this works?

Anyone able to help with an answer to this?

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16 hours ago, Janejay said:

I’ve just been told over the phone by Derbyshire CAMHS that my daughter should get an initial assessment in the next 1-2 weeks. 

I asked what that meant in terms of how long she needs to wait for treatment and the nurse wouldn’t say. Just said I’d have to wait for that call. I don’t understand what the process is to be seen. What’s likely to happen next? Does this mean she’s now about to start treatment? Or are there more hoops to jump through first?

Can anyone help explain how this works?

 

No I am afraid it's unlikely that the treatment is about to start. They will do the assessment relatively quickly, mainly to ascertain the problem and to ensure CAMHS is the right place for your daughter (rather than inpatient for example). Usually at that point the person is put on a treatment waiting list, which can be anything from 1-12 months. As we discussed I think there was about a 9 month wait in Derbyshire, or was, but hopefully at the assessment they will explain all that to help you understand.

I would recommend bullet pointing all your questions in your phone or on a notepad so you don't forget to ask them at the assessment. 

As the assessment is only a couple of weeks away, my thought would be wait to ask the GP to start the Oxford referral until you have heard what they say locally and then you make a more informed choice about treatment for Tilly.

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