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About Ashley

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  1. Yes, Paul has a great slide for this about 'nature abhors a vacuum'... so true
  2. Hi Emsie, I have had a look, and I think the medication pages on NHS Choices for all the SSRI's seem to have changed slightly. I have re-read our advice and I think I agree with you. Whilst I do think the text we have is right, it could be written better. Is that something you fancy having a go at rewriting for us? I think you have my email Ashley
  3. Ashley

    More retail woe

    And so it goes on... and on. I have spent hours this week contacting numerous retailers and one radio station. Some are listening and acting, some are reviewing. A couple of journalists are sniffing around but I have refused to comment on individual retailers whilst they have agreed to review. I now have a spreadsheet of offenders, a mix of green (resolved) and red (still offending).
  4. Well sorry you went through that, but let's avoid scaremongering. For many people (including the original poster) they find SSRI medication helpful and your experience does not indicate it will be shared by other people taking the same.
  5. Which is why I said 'generally'.
  6. Of course anyone can have a problem coming off a medication. But SSRI's are generally not addictive and most people can come off them without problem if done under guidance.
  7. It could do Dawnie, that's the problem we can't know for sure. We all have very different bodies and tolerances to medications so until you were to take it we can't know for sure.
  8. Hi Dawnie, I am afraid none of us are doctors so we can't really answer questions about medication. The problem is you touch upon there is no exact science to dosages, what medication works for person A will cause problems for person B. What dosage works for person A, may not help person B. Medication is very much trial and error. The problem is, if your symptoms are tolerable, increasing medication won't necessarily suddenly make them even more tolerable. The recovery will only come through prolonged therapeutic work. We have some information here (via NHS Choices) - https://www.ocduk.org/overcoming-ocd/medication/sertraline/
  9. Just added the 2019 conference details in the members area.

  10. I'm off to the lovely wonderful Nottingham later... it may be raining but I get to see some of the lovely people of my Nottingham group so I will be smiling :)

    1. taurean


      Singing in the rain perhaps?  :) It may be wet outside but it sure sounds nice and warm within. 

      Have a great evening! 

    2. lostinme


      Was hoping to make it this month Ashley, but sadly I wasn’t feeling well enough to come :(

  11. Ashley

    More retail woe

    Annoying thing is, even without my OCD hat on, these products are not that humorous, and the markup must be quite low on these naff products it surely can't be worth the bother for them.
  12. Tis the season to be jolly and for OCD to hit the stores... in the form of Obsessive Christmas Disorder and the like. As you may have seen on social media a few offenders at present. TK Maxx - Selling OCD Obsessive Cake Biscuit tins Called them yesterday and they were aware and were in the process of collating all stock codes (they even told me they found more offending items) and will send the list to all stores to ask they remove and return, where they will most likely destroy the stock. - They listened and acted, we can ask no more. Touch of Glass - Obsessive Chocolate and Cat Disorder Not sure this is a retail chain but a pop up that appears in shopping centres. Spotted by a member who complained at the time. Her subsequent tweets led her to being blocked. I sent this polite (for me) tweet and sent an email which earned me a block too. Through the charity account, Kirstie (well I posted with her permission) posted this tweet which also earned the charity a block, as have many others (even those sending polite tweets). These are the two offending products - https://www.touchofglass.uk.com/online-store/search%3Fkeyword%3DOCD%26offset%3D0%26sort%3Drelevance I don't lambast retailers for original mistakes, I try and educate them and try and negotiate an end to future selling of such products. All I needed was Touch of Glass to offer to stop stocking once current stock expires, I would have accepted that compromise. But to not engage any of us and block us all is pretty naughty. If anybody sees them in a shopping centre please let me know and maybe we need to write to the shopping centres to ask them to take action. notonthehighstreet.com Not entirely sure what the offending products are, Catherine one of our members is following this one up for me. She forwarded an email last night saying they are reviewing and suggests they will remove such products. So for now I am going to give them time to review and do that. (Edit - Found Catherine's links) 1. https://www.notonthehighstreet.com/lolaandgilbertlondon/product/ocd-pouch?istCompanyId=aa76f5e6-d733-4e56-8409-574cea196cc9&istItemId=xmxqqxpiir&istBid=t&DGMKT=FID__TID_aud-317724568502:pla-352021349945_PID_469922&gclid=EAIaIQobChMI_e_Sup7y3gIVbZPtCh0AYA7iEAQYASABEgJyqvD_BwE 2. https://www.notonthehighstreet.com/perfectpersonalisedgifts/product/personalised-ocd-obsessive-christmas-disorder-mug Etsy and Zazzle As above, Catherine dealing, but so far no joy from what I understand. Let us know of others. Moving forward this cant continue, so I have come up with a project plan of action which I will try and get clear in my own head today and update on tomorrow.
  13. Good questions friends... this is what the IAPT report states: Recovery Recovery in IAPT is measured in terms of ‘caseness’ – a term which means a referral has severe enough symptoms of anxiety or depression to be regarded as a clinical case. A referral has moved to recovery if they were a clinical case at the start of their treatment (‘at caseness’) and not a clinical case at the end of their treatment, measured by scores from questionnaires tailored to their specific condition. Reliable improvement and reliable recovery In addition to recovery, there are two other measures of outcome in IAPT: reliable improvement and reliable recovery. A referral has shown reliable improvement if there is a significant improvement in their condition following a course of treatment. This is measured by the difference between their first and last scores on questionnaires tailored to their specific condition. A referral has reliably recovered if they meet the criteria for both the recovery and reliable improvement measures. That is, they have moved from being a clinical case at the start of treatment to not being a clinical case at the end of treatment, and there has also been a significant improvement in their condition.
  14. Latest IAPT annual report (2017-2018) published this week. Shame to lost the Excel table of data, new way to display is harder to search. Chart below shows the 'alleged' figures for those with OCD finishing treatment. Call me sceptical that 48% reached some kind of recovery. But significantly 15% (3375 people) showed no change. That in itself bad, but poor IAPT experience will have put some of those people off seeking further treatment. As for 3% (608 people) showing deterioration, not all will be IAPT fault, some of those should not have started IAPT in first place which means we need better pathway interventions, some will naturally get worse of course. But I know from talking to people, some did get worse because of poor IAPT therapeutic intervention, and that is shameful and needs to change.