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Orwell1984

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  1. Wish there was a ‘rate my therapist’ app or glassdoor for therapist and counsellor companies. I would love to expose a long list of idiots. One in particular, a mother of my friend who had OCD also. No wonder she had ocd. Ughhhhhhhhhhhh
  2. That’s something I hadn’t considered but yes a terrifying possibility!!! And for the possible interference with pacemakers and eventual replacement of the implanted structure you mentioned in your post, I agree with you completely.
  3. Just catching up on this thread. These scenarios are like ‘flowers for Algernon’, kind of. Very sad for the people who had tasted the good life only for it to be taken away. I would rather be dead too in fairness than have this happen to me!!!
  4. 6 patients is too small a sample size. What will these patients be like one year from now? Will they regress? Will their ocd get worse? If their ocd stays improved and they have not been affected adversely in any other way, only then would I see it as a viable treatment, because at least then we would know what the risks are in order to decide upon that treatment or not
  5. I think you might be right Ashley. They just want the ‘market research data’ - ocd sufferers views - post hoc to help promote a sales pitch. I think our collective views are to be part of the proposal package that will go to whatever ethics committee who will give the go ahead for clinical trials, as the ‘demand’ is sufficient.
  6. This is mad. How are NICE expecting us to form any opinions without scientific literature to inform our thinking? A bit Brexity if you ask me! Plus I do fear the ‘ethics’ behind the clinical trials. What about the follow up care 1 month later, 1 year later, 10 years later after the trials are done, the big bucks are made and the researchers have made their name? -What do patients (or carers) think the advantages of the procedure or operation are? A reduction in ocd thought patterns leading to an increased quality of life and disabling the disability. -What do patients (or carers) think the disadvantages of the procedure or operation are? We don’t know what we are playing with in terms of the human brain. Will this affect personality, memory or ability to function cognitively and/or biomechanically? Will the electrical stimulation bring on seizures or disrupt the heart’s electrical function. And what about 1 monty/year/10 year’s down the line? Who will help participants recover from detrimental side effects? Whatever those may be? -Are there any groups of patients who might benefit either more or less from the procedure or operation than others? If so, please describe them and explain why. These groups could be adversely affected I think: People with co morbid problems alongside ocd like epilepsy (seizures due to brains’ electrical malfunction) or schizophrenia (opposing levels of dopamine and serotonin in schizophrenic brains compared to ocd individuals’ brains giving rise to this condition). How would the treatment be safe for these individuals? Plus for those who are neurodiverse (autism, aspergers), and whose brains have a different architecture, so different neuronal wiring, would this treatment not potentially be detrimental? Again, a risky unknown. And are these electrodes to stay implanted for life? What about airport security scanners, or scanners in daily work (finance companies and government agencies have full body scanners). Would people not be limited? How do you explain that you have a wire in your brain? It’s not quite like saying you have a pacemaker!
  7. I was thinking about buying a chest freezer for frozen veg but maybe it’s ocd - after reading this thread I think maybe it might have been? Checking the market rates and news reports to see whether you should buy stuff is definitely ocd however. Those are compulsions you need to stop.
  8. Yes, now I’ve Queen in my head. Long live Freddie good call Caramoole
  9. If there were more studies behind it and conclusive indicators that it’s more help than hindrance, then truthfully I would definitely sign up for it. But what if it produces a different outcome with people who are neurodivergent, like people who are Autistic? There needs to be more data analysis behind this decision
  10. What do you think the advantages of the procedure or operation are? Giving the brain a jump start may change the pattern of electrical signalling, in doing so changing the thought patterns the impulses translate to. Like getting a cardioversion done on your heart to correct an arrhythmia. What do you think the disadvantages of the procedure or operation are? What if it triggers epilepsy Surely though they would need to have done way more trials to inform them on its safety/efficacy? It seems like it’s too soon to be pushing this treatment, particularly from a respected institution such as NICE. Seems very Americanised 😕
  11. Every single workplace I have been in in the past year (3 temp jobs), there have been similar references to ocd by work colleagues. I just let it slide now. It’s similar to people overusing the word ‘like’. Can’t stand it, but can’t change it
  12. It’s sad that you’re still caught in ocd’s web. You need to stop trying to prevent things from happening & you need to stop responding to the alarm bells in your head. Analysing is a compulsion, planning decontamination strategies is a compulsion, carrying out decontamination is a compulsion, asking/monitoring your partner for contamination spread is a compulsion. Mentally running through the order of events in order to check for risks is also a compulsion. Stop doing these things even though it’s really hard or else you’ll be in the same mental place or worse, Phil.
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